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lymeblue's Social Networking Profile

Your Name: lymeblue
Where You Live: Genoa City, WI
Years With
Lyme Disease:
4
Your Age: 45 Years
Your Gender: Female

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lymeblue's Lyme Disease Journey

My Personal Website

http://lymeblue.wordpress.com

lymeblue's Lyme Disease Story

End of June 2009 – Camping in Trego, WI (near Hayward) – rash that looked like a target on my right inner elbow which was 4-5” in diameter July 23rd – Saw my primary doctor for extreme pain in bottom of feet that I thought could have been bone spurs and mentioned the rash as well in case it was related. Had some other female issues addressed at that appointment for which he ran testing. August 6th – Dr. had a phone appointment with me regarding my testing, and it is only then that he notes my concern about the rash I had addressed in July and experienced back in June. He then ran a test for Lyme an IGG/M AB which he says was negative. My understanding is that doctors are aware that this is common in early stages of Lyme disease and need to take symptoms into account especially those who have a “bulls-eye” rash. Again, I’m a layperson and knew nothing of this, but a doctor in a high-risk state certainly should. December 1st – Saw Dr. about the strange headache on the top of my head and the dropping letters in my writing, dropping words, searching for words, etc… that started in roughly October. He referred me out to a neurologist. January 11, 2010 – Saw neurologist for my initial consultation. The vibrating episodes intermittent episodes in my brain he referred to as seizures although I don’t see any note of that word in my chart. He began treating for migraine which did not work over time. He began looking for other solutions settling on pseudotumor cerebri as a lumbar puncture and Diamox seemed to ease my headache for a period of time. I saw him many times. 2010-11? – Saw Dr. for a persistent sore throat and swollen glands that had gone on for too long to track. Referred me to EENT. He suspected a reflux issue, and I went on Prilosec for months which did not ease the problem. 2010-12 – Saw Dr. for irritable bladder multiple times that was apparently happening without an infection. I do have a strong history for infections and kidney stones; however, the irritability is new and persistent. At one point, he referred me to a specialist for this who wanted to scope my bladder, etc. I did not return to her. June 2011 – Saw Dr. for pain in left shoulder so bad that I could no longer lift my arm. I had a lipoma in that upper arm and thought it may be what was causing me pain. He referred me out to a surgeon who surgically removed the benign lipoma. The shoulder pain recurs and migrates to other joints. March 2012 – I watc

lymeblue's Lyme Disease Symptoms

Joint Pain or Stiffness, Panic Attacks, Anxiety, Malaise [sick all over feeling], Difficulty Sleeping, Headache, Night Sweats, Seizures, Numbness, Memory Problems, Trouble Concentrating, Irritability, Neck Pain, Gastrointestinal Symptoms, Nerve Pain, Vision changes, Sub-normal body temperature

Other Lyme Disease Symptoms lymeblue's had:

sore throat, bladder irritability, skin rashes
lymeblue's Lyme Disease Basics
I contracted Lyme Disease in: Hayward, WI
I contracted Lyme Disease in: 2009
I was diagnosed with Lyme Disease 3 Years after onset of my symptoms.
I was diagnosed with the following: Migraine, before being diagnosed with Lyme Disease.
I saw 4 physicians before being diagnosed with Lyme Disease.
I remember being bitten by a tick: No
I had a bulls eye rash: Yes
I've been treated with oral antibiotics: Yes
Oral antibiotic treatment was for: 1 Year
I've been treated with IV antibiotics: Yes
IV antibiotic treatment was for: 2 Months
Prior to treatment, the effect Lyme Disease had on my life was: Major Effect
After treatment, the effect Lyme Disease had on my life was: Major Effect
My current quality of life is: Bad
To obtain medical care and relief from Lyme disease I have spent out of pocket: $10001-$20000
Percentage of my Lyme medications that are covered by health insurance: 75% or more
Approximate amount I spend per year on supplements or herbs for Lyme Disease: $0-$500
lymeblue's Lyme Disease Test Results
Elisa - Negative
Western Blot IgG - Positive
Western Blot IgM - Positive
Lyme PCR - Positive
Babesia - Negative
Ehrlichia - Negative
Lyme Disease Alternative Treatments lymeblue's Tried
Diet has been: Not Helpful
Lyme Disease Antibiotics and AntiVirals I've Tried
Doxycycline has been: Not Helpful
Erythromycin has been: Not Helpful
Clarithromycin has been: Not Helpful
Tindamax has been: Not Helpful
Levaquin has been: Not Helpful
Valtrex has been: Not Helpful

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